I am before you in a body that is broken. A.L.S. is a cruel disease. 12 years ago I was a healthy man who played with his children, a man who hugged and cuddled with his wife Suzanne. 12 years ago I liked to cook, I could do chores, I loved to sing in choir, […]
Easter: Cure or Healing? Read More »
There is an insidious movement afoot across the country. A movement to entitle people to receive benefits they did nothing to earn, benefits paid by the rest of us. We are creating a class of freeloaders when there are jobs out there to be had. What’s more, our elected representatives are not only perpetuating this
The Right to Freeload Read More »
As I type this our firstborn child, our baby, is in labor at our local hospital. Our firstborn is in the process of delivering the firstborn for her and her husband.Our firstborn, our baby whom Suzanne spent more than 30 hours trying to deliver before the baby became distressed and required emergency Ceaserean Section. Our
If you want to call me a geek, that’s fine but you’re at the end of a long, long queue. I worked out the math for how many pALS would need to participate in a clinical trial to have a valid random sample group. Spoiler alert: Lots.I won’t bore anyone with the formula, but I’ll come clean
The Bad Math of ALS Trials Read More »
@Suzanne Boncel Heronemus and I made the Tribune this week for our start to elevating awareness of the difficulties faced by people with disabilities out in public. Our city’s leaders have been wonderfully open to this conversation. A Panera customer may have overheard management talking about their doorway, so our efforts may be bearing fruit already.
Awareness Efforts Bearing Fruit Already! Read More »
New Illinois Governor Bruce Rauner has made a mission of “fixing” the state’s budget, and we have just seen who he expects to pick up the load. He’s not tapping the wealthy, the corporations or even the middle class, he’s going after that well-known, entitled, deep-pocketed class called the Disabled. Rauner’s budget eliminates subsidies for regional and
Rauner Budget Punishes the Disabled Read More »
Suzanne and I were honored with the opportunity to begin a dialog with Batavia’s leadership on making our city a safer, more inviting place for people living with physical disabilities.Read Eric Schelkopf’s article in the Kane County Chronicle.My presentation text: Good evening and thank you for this opportunity to speak with you.When Batavia was founded, families
Working for Accessibility in Bavaria Read More »
The national ALS Association is failing to support the ALS community that so lavishly supported it. It is awash in cash from last summer’s Ice Bucket Challenge, a $120 million windfall it never expected. The IBC was a grassroots effort it did not need to plan, organize or run, yet people with ALS (pALS), their
ALSA Freezes Patients Out Read More »
In my opinion this is Kubrick’s most misunderstood work. Critics at its release were put off by the lack of emotional drama and perceived sterility, especially when compared to Platoon. Today’s critics call it a masterpiece (it gets a 94% at Rotten Tomatoes) for its “innocence lost” and human duality themes
How Tough is Your Jacket? Read More »
Pastor Bill Knapp of Fox Point Lutheran Church (Fox Point, WI) delivers wonderful sermon “Don’t write the Unfortunate Story” highlighting the choice we have in Christ to live in the light. I’m honored that he quotes from Shells to support his point. Listen to the sermon here.
Shells Gets Sermon Mention Read More »